top of page

The Fork in the Road


It's time to update everyone again. We've gotten a little bit more news and are anticipating more later this week. On Friday, the lung transplant doctor visited Daniel with some news from Toronto. We'd been waiting for the liver team to talk to the lung team and figure out a time for us to go down to Toronto. Instead, they came back with the decision that Daniel doesn't need a liver transplant. Only a lung transplant. After some back and forth, we're still working with Toronto and just heard today that they're going to meet and make a decision later this week.

We're at a fork in our road now and we're terrified. If it's a yes, things could move very quickly and we might end up in Toronto sooner rather than later. That means a lot of things will have to come together very quickly for us to move down there. And it's really clear that the transplant itself is becoming more and more risky. Or, it could be a no. We've become increasingly concerned that we've missed our chance for a transplant, that he's too complicated, too sick, too far gone. Both roads are long and dark and scary. We're just hoping that the answer we receive will give us a little bit of peace, a little bit of hope and a little bit of light to illuminate our path.

I've just started reading The Lord of the Rings again and it feels so much like our journey, one neither of us asked for, one we (or at least I) have had the opportunity to turn back from and one we continue to pursue, no matter how little light there is ahead. This is no longer The Hobbit, no longer a children's tale with the knowledge that we'll be back. But it's the simple, uncomplicated love between Frodo and Sam that triumphs in the end. So that's what we'll continue to do, love each other and keep putting one foot in front of the other.


You Might Also Like:
bottom of page